Rob Burrow here.

Many of you know me from my days playing rugby league for the Leeds Rhinos. We achieved some incredible things together, lifting the Super League trophy eight times! But life throws you curveballs sometimes, and in 2019, I was diagnosed with Motor Neurone Disease (MND).

This blog isn’t about dwelling on the negatives, though. It’s about sharing my story, the challenges I face every day, and the incredible support that keeps me going. It’s also about raising awareness of MND, a disease that needs much more research and support.

From the Pitch to Facing MND

Rugby was my life. I loved the physical challenge, the camaraderie with the team, and the roar of the crowd. Winning trophies was amazing, but it was the journey, the battles on the field, that I truly cherished.

Retiring in 2017 was tough, but exciting too. I was looking forward to spending more time with my family, Lindsey, my wife, and our three children. But then, in December 2019, everything changed.

It started with a weakness in my right leg. I put it down to wear and tear from years of playing. But the weakness grew worse, spreading to my speech and swallowing. A series of tests led to the devastating diagnosis – MND.

MND is a brutal disease. It attacks the nerves that control muscles, slowly taking away your ability to move, speak, and even breathe. It’s been a huge adjustment, but I’m determined to live life as fully as possible, for myself and my family.

Finding Strength in Challenges

The initial shock of the diagnosis was overwhelming. But with time, a new kind of strength emerged. The support of my family, friends, and the incredible rugby league community has been unwavering. My wife, Lindsey, has been my rock, a constant source of love and encouragement.

My former teammate Kevin Sinfield has become a true brother-in-arms. Together, we’ve embarked on a mission to raise funds for MND research and support. The “Decider 8” challenge, where Kevin ran eight marathons in eight days, was a phenomenal feat that captured the hearts of the nation. It raised millions for the MND Association and truly put the spotlight on this devastating disease.

There have been many other incredible fundraising efforts – charity walks, dinners, auctions, the list goes on. It’s humbling to see the outpouring of support. It shows the power of community and the incredible spirit of people coming together for a cause.

A Day in My Life with MND

Every day with MND is different. Some days are better than others, but I try to focus on the positives. My mornings start with physiotherapy, helping to maintain what muscle strength I have left. Technology plays a big role in my life now. I use an eye-gaze device to communicate and a ventilator to assist with breathing.

Despite the challenges, I still find ways to enjoy life. I love spending time with my family, watching rugby (although it’s a bit frustrating not being able to jump up and down anymore!), and following the progress of the Rob Burrow Centre for MND, a specialist care facility being built in Leeds.

The centre is a dream come true, something Kevin and I have been working towards for years. It will provide much-needed support for MND patients and their families in Yorkshire. Seeing it take shape is a huge motivator, a symbol of hope for the future.

Living with Hope

MND doesn’t define me. It’s a part of my life, but it doesn’t diminish my spirit. There are still many things to fight for, more memories to make with my family, and a future where hopefully, a cure for MND will be found.

This blog is just a glimpse into my life with MND. I hope it’s helped raise awareness of this disease and the importance of continued research.

If you’ve been reading this and are interested in getting involved, there are many ways you can help. You can donate to the MND Association, take part in a fundraising event, or simply spread awareness by talking to your friends and family.

Every little bit counts. Together, we can make a difference.

Thank you for your support.

Rob Burrow